I’m still here!
I just realized it’s been awhile again. I really need to get in the habit of updating this blog, don’t I?
As far as recent events in the Vender world…
Adrian hasn’t been traveling for work as much, which means everything to me. And his job is great! He was selected as a speaker at a big name web conference in NYC and went out there to present last month, I was so proud of him. He is remarkably talented at what he does. I’ve kept busy with Claire and taking care of our home as usual, and also with my lovely side blog Hey Little Birdie. I’ve also found the time to do some crafting, baking, and try some new recipes, which keeps me being me. We’re gearing up for the holidays and wishing for cooler weather. We plan on going to the pumpkin festival this weekend and Claire is going to be an ASU cheerleader for Halloween.
As far as an update on Claire, I don’t really want to go into the seizures too much. It’s just too hard to talk about and I feel like I have to talk about it with EVERYONE. Family, friends, therapists, doctors, social services, strangers. I want so much for the focus to be more on Claire as a person and not on her disabilities. Let’s just say this past summer has been absolutely heartbreaking in terms of the severity of her epilepsy, we are trying new medications again, and as always will not give up fighting for her freedom from these awful seizures. We are participating in the Phoenix Epilepsy Walk next month, here is a link if you want to donate to Claire’s team. And if you live in the area, we would love to have you join us and walk! It should be a fun time, you can bring dogs and strollers too.
A few other fun recent happenings with Claire is that she has been grabbing things when they are touched to her hand and she does this activity we call her “loco legs” where she gets jingle bells on her ankles and kicks and dances like crazy. It is beyond cute and silly. I took a little video of it, so I will have Adrian help me upload it. I’m also warming up to the idea of Claire attending special needs preschool. Two of her therapists work at the one we would send her to, and they report that her teacher is wonderful. I’ll have to go sit in and visit soon to get a better feel for it. It is honestly hard to think about, every time a new milestone arrives my heart hurts all over again. It’s difficult to see your friends’ children going through these normal childhood transitions and to mourn all over again for what happened to Claire. I know it is something that will continue throughout her whole life for me. And although it is a sadness that may never completely heal, I am slowly learning how to cope and process it better. I definitely feel different about that grief than I did when Claire was first born. I hate that so much has been taken from her, that she has to go through such hard circumstances, that she has seizures daily… but the love I have for her is greater. Just one smile or tiny reaction from her brings me indescribable joy. She is unbelievably brave and drawn to music, two traits she got from her amazing daddy. She is stubborn (especially with therapists) and loves to be silly, which she got from me. I love who she is. And I hope as time goes on, we will get to share more of what makes Claire so special with the world. She really has a lot to teach it.
Here are some more recent pictures: