Two things

May 2, 2011

1. Adrian and I celebrated 8 years of marriage last week. Here are a couple pictures that a nice lady took of us. We’re at the place where we had our wedding, The Farm at South Mountain.

IMG_2938 IMG_2939 IMG_2940

2. Please read this post. If there is anything that I would love to teach the world about Claire, it would be much of what she said and more. I especially wish that every doctor could read it. You don’t know how hard it is when you are constantly in the presence of medical staff and most ignore the fact that your child is even in the room. No “Hi” or “Bye” to Claire, talking about her like she isn’t there, having less of a regard for how side effects/pain will make her feel. It breaks my heart. I yearn for a day when everyone- no matter how they look, move, talk, act, or learn- will be treated equally, with consideration and kindness. I heard someone speaking the other day that repeatedly used the term “psycho.” And I know I have used it in the past too. But it got me thinking what if someone was listening who dealt with mental illness. I was thinking about how would it make them feel when we use a medical term about something they struggle with as an insult. Or words like spaz, spastic, especially the R word. I want to be more mindful of choosing not to say them. There are plenty of neutral words to use to describe something as crazy or stupid without choosing something that insults a group of people. Anyway, I hope you read the post and take what it says to heart. Love you all!

by | Categories: family |

3 comments | leave a comment

  1. Allison
    May 2nd, 2011 at 11:58 am #

    Great post. Yours AND Katy’s. Thank you for always sharing about Claire and being an advocate for her… it is making the world a better place 🙂

  2. Josie
    May 4th, 2011 at 10:47 am #

    Happy Anniversary! I bet it was a wonderful day! 🙂

    I read the article a couple days ago, but haven’t had a chance to respond… thank you for posting it! There are some things I’ve felt myself having autism in our home, but also issues I hadn’t thought about for families with other special needs. Thanks for enlightening me a little more!

    I love to see your love for your little girl. You’re such a great family. 🙂

  3. Wendy
    July 20th, 2011 at 11:40 am #

    I want to say something meaningful, something touching and inspirational and all that, but all I can say is thank you. Thank you for being such great parents, sharing your story and reminding us all to be more compassionate, understanding, patient… I, too, “yearn for a day when everyone — no matter how they look, move, talk, act, or learn- will be treated equally, with consideration and kindness.” I was blessed with a special brother who taught me love, compassion, patience and understanding beyond measure. Those traits serve me well as a mother to a child with challenges like Tourette, OCD and ADHD. It’s heartbreaking sometimes, but there’s so very much to be thankful for. God bless you both.

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