a few things to keep you all in the loop-
1. claire had her follow up barium swallow study at phoenix children’s hospital this week and (drumroll please) … her swallow is 100% normal. she can even swallow ultra thin liquids like water normally. this doesn’t mean she doesn’t gag anymore (we are still trying to find out why she does that sometimes) but it does mean that her muscles are strong and there are no signs of anything unsafe in the way her body operates during a swallow. thank you Jesus!
2. we got the new seizure med from the UK in for claire’s infantile spasms. it will be a bit before we know if it works or not so please continue to pray for this.
3. claire is now 10 months old! wow wow wow. i am already starting to plan her one year bash and needless to say i know it will be extra special!
4. some other things you can pray for: our finances, we have HUGE medical bills and adrian recently lost a big customer so things have been pretty tight for us lately. we are trying to make budget cuts and adrian is finding some new projects but it is still a little rough for us right now. which brings me to the next thing, our trip to MN. we really want to take claire to MN for the big evjen family reunion and to see all of her family she has yet to meet but with our budget, it looks pretty unlikely. please pray that we would find a way to be able to see our family, we are even considering driving since the cost of gas would be cheaper than flying and renting a car. one more thing is we have claire’s long term care interview this afternoon. please pray that she would be approved. it would open a new avenue for services and supports for her. and it is also something that the state cannot take away due to budget cuts. thanks guys, we love you all!