two weeks!

Mar 24, 2009

it’s been two weeks now since we removed claire’s feeding tube and things couldn’t be going better! she is doing above and beyond what she needs to,  is trying all sorts of new baby foods and getting ready to chomp on something with those itty bitty teeth. of course today her tummy is acting up, i’m sure it’s some new food that she is not liking so it will be only formula and oatmeal until the gassy baby feels better. but overall we are unbelievably impressed with our claire bear. we can’t wait to see what she will learn next.

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my heart is confident in you, O God; my heart is confident. no wonder i can sing your praises! psalm 57:7

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chapeau de fleur.

Mar 21, 2009

claire has the sweetest, most craft-tastic auntie amber. this week a special little package arrived and inside was the cutest crocheted cap i have ever seen.

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the flower is interchangeable to match miss claire’s outfits. perfection. you know how i love hair accessories for my baby girl! if auntie amber was here right now, claire would give her a big slobbery kiss and then probably start crying. why you ask? because as i previously mentioned, the pesky tooth fairy has come to visit the vender household. claire does not like her one bit! especially at night. poor claire. i wish she knew how to hold things to her mouth so a chew toy would offer some relief. currently, the only thing she wants is to chomp on her pacifier like a baby piranha. here’s proof:

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anyway, visit amber’s etsy shop and buy lots of goodies!!

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i wanted to give a quick update on what is going on with the early intervention services in our state. the day before claire’s therapies were to be cut, a judge issued an injunction and stopped the state from ending services to babies! our DDD coordinator says that therapies will continue until they hear otherwise. can i get an AMEN?! in the meantime, we are applying for federal long term care funding for claire since those programs are more protected than the state programs. it is difficult for babies to qualify but we are hopeful that with claire’s diagnosis, she will be accepted. so anyway, a big hooray for the judge who helped all the families and babies who benefit from early intervention therapies! i am so happy to see evidence of people in power who really have a heart for the citizens they serve and do what is right! i’ll try to keep you all updated as this situation progresses and rally the troops if needed! 🙂

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cousins.

Mar 19, 2009

last weekend, our little family (minus lily) traveled to las vegas to visit our newest family member, alyssa hope. what a cutie! i can already envision shopping trips with tia nicky and prima claire in her future!

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we had a wonderful road trip, claire did awesome with her bottle and was an angel in the car and hotel room. she was a bit cranky at nights but that can be attributed to two little teeth popping up on the bottom of her mouth! we only wish rich and ivana lived closer so we could spend more time together. i remember all the time i spent with my cousins growing up and i am so thankful claire now has two special cousins in her life. here’s the troublemakers together:

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it isn’t easy getting three little kids to pose for you, that’s for sure! big hug and kiss to richie and alyssa, we miss you guys already!

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here’s my pretty shamrock. i’ve been staring at her napping and thought i’d share my view.

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in case you didn’t yet know, it’s been one week without the feeding tube! i still cannot stop looking at her beautiful face and thanking God for this one answered prayer. she is doing so well eating on her own and i only hope it continues. on march 31st, we are going to barrow neurological center to get a second opinion on her seizure treatment. please keep praying with us that we find the right doctor and medication to take the seizures away forever.

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