a bit of good news.
we went to see the pediatric opthamologist today since claire is not tracking with her eyes well. we needed clarification that her eyes were structurally normal and all their parts were in the right places. it was a bit of concern b/c eye nerve problems go hand in hand with the part of her brain that is missing. fortunately, her eyes are developed exactly how they are supposed to be! what this means is claire has cortical visual impairment. meaning that her eyes can see but her brain is not processing the information correctly all the time. there is great reason to hope that claire’s brain will figure out how to “see” better as time goes on and with the help of visual therapy. we plan on starting that asap to give claire for visual stimulation. we are so thankful that even in the midst of all these struggles and trials, we still can receive little rays of hope for claire and celebrate the joy that she is in our lives.