well i don’t have much to say today. miss claire has been quite cranky for the past few hours, courtesy of a gassy tummy.
we had some good news yesterday that claire will NOT need a hip brace for the time being. her pediatrician said the looseness is not too severe and she would just want to do a repeat hip ultrasound in a few months. we also cancelled all her neuro appointments today. we began to feel really uncomfortable with the idea of the CT scan and exposing her to radiation for a non-emergency situation. she’s already had quite a few x-rays which makes us want to limit any more of them. i’ve realized with all of the medical interventions she needs that you really have to research things and not take doctors at their word. with so many specialists involved, they really do not do a great job of communicating with each other and it forces parents to decipher what is best for their child. in my opinion, the more we are able to allow claire to be a normal baby and give her time to grow the better. so all that brain stuff is on hold for now.
instead we enjoyed a beautiful lunch date with daddy and even lily at joe’s farm grill. sitting in the shade under the huge trees, enjoying lemonade and sweet potato fries- it was a lovely day. that is until the gas monster arrived. 🙂