a little background.
i thought i’d better give an update of what is going on with claire bear since i’m not sure how much everyone knows. although there is a lot that adrian and i will not know until claire gets bigger and develops over the years. here’s the story so far- claire was born at 35 weeks because i had dangerously low amniotic fluid (i was in the hospital @32 weeks.) she was frank breech, which means her feet were hooked above her shoulders (ouch!) and because of this, we recently discovered she has hip dysplasia. she will most likely need to be in a soft brace for a couple months to correct it, no biggie right? if only that was the only thing she had to overcome! claire was born with a part of her brain missing called the corpus callosum. it basically helps the two sides of the brain communicate. combined with that she has a few cysts in her brain as well. both of these issues separately are usually not too serious but combined raise more of a red flag. her doctors tell us that what they see so far is very promising and baby’s brains adapt so well and make new connections in amazing ways. we are faithful that her brain will continue to grow, repair and develop as we have already witnessed. she may have some delays but we do not have any reason to think they will be significant. claire also has some blockage in her kidneys and they are being closely monitored. her specialists are hopeful that the blockage may clear itself as she grows and since the function is normal right now they do not want to do anything. we are so thankful that her kidneys work and seem to be healing themselves! lastly, claire has serious feeding problems. at the hospital we discovered that she has a weak swallow and aspirates thin liquids. we tried thickening her formula but still had a choking episode so she is fed with a tube that goes from her nose to her stomach right now. we are starting feeding therapy on friday. god is so good that he provided a therapist so quickly for her! the doctors are again confident that the poor swallow is something that will improve over time and will not be permanent. so there you have it. our little miracle. she has already proven she is a fighter and full of strength and wonder.
for you created my innermost being; you knit me together in my mother’s womb. i praise you because i am fearfully and wonderfully made. your works are wonderful, i know that full well.
psalm 139: 13-14