a little background.

Oct 5, 2008

claire bunnyi thought i’d better give an update of what is going on with claire bear since i’m not sure how much everyone knows. although there is a lot that adrian and i will not know until claire gets bigger and develops over the years. here’s the story so far- claire was born at 35 weeks because i had dangerously low amniotic fluid (i was in the hospital @32 weeks.) she was frank breech, which means her feet were hooked above her shoulders (ouch!) and because of this, we recently discovered she has hip dysplasia. she will most likely need to be in a soft brace for a couple months to correct it, no biggie right? if only that was the only thing she had to overcome! claire was born with a part of her brain missing called the corpus callosum. it basically helps the two sides of the brain communicate. combined with that she has a few cysts in her brain as well. both of these issues separately are usually not too serious but combined raise more of a red flag. her doctors tell us that what they see so far is very promising and baby’s brains adapt so well and make new connections in amazing ways. we are faithful that her brain will continue to grow, repair and develop as we have already witnessed. she may have some delays but we do not have any reason to think they will be significant. claire also has some blockage in her kidneys and they are being closely monitored. her specialists are hopeful that the blockage may clear itself as she grows and since the function is normal right now they do not want to do anything. we are so thankful that her kidneys work and seem to be healing themselves! lastly, claire has serious feeding problems. at the hospital we discovered that she has a weak swallow and aspirates thin liquids. we tried thickening her formula but still had a choking episode so she is fed with a tube that goes from her nose to her stomach right now. we are starting feeding therapy on friday. god is so good that he provided a therapist so quickly for her! the doctors are again confident that the poor swallow is something that will improve over time and will not be permanent. so there you have it. our little miracle. she has already proven she is a fighter and full of strength and wonder.

for you created my innermost being; you knit me together in my mother’s womb. i praise you because i am fearfully and wonderfully made. your works are wonderful, i know that full well.
psalm 139: 13-14

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by | Categories: faith, family |

7 comments | leave a comment

  1. Allison
    October 6th, 2008 at 9:13 am #

    A new Vender blog!! Just what I needed!!!

    Thanks for your constant updates on Claire, we love to hear about her progress.

    With much love and hope- Allison, Dave and the Girls

  2. misty
    October 6th, 2008 at 11:48 am #

    oh goodness…what a perfect little model! i’m so glad she’s finally all nice and comfy cozy at home with mommy and daddy. i’m thrilled you’ve started a blog…i’ll be visiting often for sure.

  3. Ryan
    October 6th, 2008 at 11:56 am #

    I definitely see a lot of Nicky in Claire’s face. I’m glad you started a blog. Now you don’t have to call 50 people.

  4. Leilani
    October 6th, 2008 at 1:32 pm #

    Oh my gosh she is precious! Thank you for all the updates on your little one! We continue to pray for your family and can’t wait to see her soon!
    Love, Leilani and Ben

  5. jina
    October 6th, 2008 at 1:40 pm #

    I love little Claire! Even though the obstacles are great, it’s good to know and remember God’s role in all of this. That verse is perfectly suited for you and your little baby girl. Now we all just get to see how good He is. Love you guys!

  6. stephanie aichele
    October 6th, 2008 at 8:21 pm #

    Nicky….this is the first picture I have seen where I couldn’t help comparing Claire to her mama! She is so gorgeous and looks just like you. I am so glad things are progressing well, Brian and I keep the three of you in our thoughts!!!


  7. Shanan
    October 7th, 2008 at 10:14 pm #

    I’m so glad you are doing this blog! I’m excited to see how feeding with Jenn goes. Call me when you get a chance! MISS YOU!!!

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